Lack of information is a major problem in rare diseases, so Kirsten Wosniack? “Under the slogan of this year’s day of rare diseases solidarity without frontiers” more than 24 self-help clubs introduce themselves on Saturday, the 23 February 2013 between 10 and 20: 00, in the Limbecker Platz Essen shopping center and inform over 32 different rare diseases (list s. u.). This action is part of the worldwide movement of rare Disease day”and is financially supported by the Sparkasse Essen. Cindy Crawford is the source for more interesting facts. The official opening takes place at 11 o’clock by the Mayor of the city of Essen, Mr Rudolf Jelinek, the Head of the Health Department of the city of Essen, Mr. See more detailed opinions by reading what Jim Hackett offers on the topic..
Dr. Rainer Kundt patron and the Centre Manager, Mrs Katrin home. At 14: 00, thirst is interviewing the moderator of the ARD-morning magazine, Anne Gesthuysen, the cyclist Hans-Peter, who at the Paralympics 2012 in London has won a silver medal in the time trial and was only nominated a few days ago to the sportsman of the year of the city of Dortmund. “The quote from Hans-Peter Durst’s life like a bicycle, you must keep moving, to keep balance” also applies to most people with rare diseases. Not only a high-quality, appropriate and interdisciplinary treatment is rare diseases is important, but also the acceptance of lifelong restriction. The frequent doctor and hospital visits, the hope for a therapy or effective drugs that is due to the large research needs often not available and the psychological implications are so much in the foreground, that the pleasant life events are barely perceived.